Post Fontan Life

Trent had a pretty tough day on Thursday. Each day he has had some ups and downs, understandable. But Thursday was mostly downs. He had a good bit of pain and laid around just about all day. He continued to have a good deal of drainage. So they kept the tubes in for the day.

Male Bonding Day

Not a whole lot has changed since we last posted. Trent is still doing well and camping out on the 8th floor of Levine.

The Waiting Game Continues...

Trent has done well the last couple of days.

On Sunday afternoon he got his central line removed, which of course he was not happy about. He is going to grow to be terrified of any type of tape. We are excited to be free of IVs!! Dad was able to go home Sunday night and spend some much needed time with Big Brother and get refreshed with a good nights sleep. This also allowed Braxton some time at home so that he could play with his neighborhood friends.